TPALS Home
Stories:
Diagnosis
Stopping driving
Going to a Wheelchair
Positioning in Bed
Feeding tubes
Using a BiPAP
Getting a trach
Life on a Vent
Power outages
Resources:
Communication Aids
ALS Links.com
ALS Survival Guide
ALS Links
More Links
ALS Association
MDA
Misc. Issues:
My Meds
My Treatment
Dr. Meagher & Pergonal
Ron Leeb & ricin
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Yes! The purpose of this web site is to provide stories from PALS
(People with ALS) and care givers about turning points in their illness
and how they handled these issues so others can find information, help,
and encouragement.
Disclaimer:This site contains discussion of medical issues which
should not be taken as medical advice. You can get ideas and information
here, but always discuss medical issues with your doctor.
Not everyone wants to know everything up front. Some people, just due to
their temperament, can only deal with "today's issues," and thinking
about the future may cause unnecessary stress. My wife, Susan, is like
this, but I wanted to know the details so I could "map" the future to
some extent. If you are a care giver or friend sharing these stories
with a PALS, be sensitive and ask often, "Is this overwhelming to
you?" But this can be a cover for denial. Someone close, if not the
PALS, needs to be thinking of the future. For some PALS the disease
moves quickly, and the future may be next month.
Some of these stories come from the online ALS Digest, with permission.
Email Bob Broedel at
bro@huey.met.fsu.edu to receive the Digest regularly via email. Back
issues are available at:
http://www.glnicholas.com
http://www.alslinks.com
Press CTRL+D to bookmark this page.
What's new:
vents: David A.'s Story
bipaps: Kara's Story
Support our family
page
The results of my treatment
Rest Ministries, Inc.
P.O. Box 502928
San Diego, CA 92150
619-237-1698; toll-free 888-751-REST
http://www.restministries.org
You can contribute
financially online to ALSA to aid research and patient services. You
can also support ALSA and spread awareness of ALS with license plate
frames, caps, t-shirts, mugs, etc. Purchase online.
Do you find this site helpful? Have suggestions for new topics? Let me know.
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